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Your Child Has Autism. Now What?

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Written by Christy Nelson   
Thursday, 26 June 2008
Welcome to the roller coaster that is now your life. You will experience the highest highs and the lowest lows. At times you may beg to get off. Other times you will feel the rush of the wind through your hair and wonder why in the world all the other parents prefer the carousel. What follows in this article is just one parent's view. Just because our children share the same diagnosis doesn't mean that what works for my child will work with yours. This article is just meant to give you some basic tips and tricks to help you when you first get your ticket to ride the Autism Coaster.

1. Buckle up. Basically, be prepared. This is a slippery slope as there is so much information out there. You can get lost for days navigating the books and websites devoted to autism. Remember that this ride is different for everyone. Don't get discouraged if some of the treatments aren't right for your family. My son may thrive with PECS, an augmentative and alternative communication technique. Yours might respond to ABA, Applied Behavioral Analysis. Also, our kids change. What worked last year or even yesterday, might not work today. When you thought you knew what was coming around the bend, it can change at any time. 

2. Invite others to ride along with you. You can not do this alone. Lay the mommy guilt at the door and find help. You should be able to receive services from your local school district and make sure you take advantage of all they have to offer. In my area we have a local group that caters just to families affected by autism. You'll soon become acquainted with a number of people that will love your child as much as you do. I've found that when I think I won't be able to make it up a big hill, they are there to push me up.

People not directly involved in the care of your child should also be invited to ride. Share what you know with others and help people understand the unique needs of your child. In my experience I have found that most people are genuinely interested in learning more and helping out in whatever way they can. Surround yourself with these people.

3. Enjoy the ride. A thrill a minute. That's how I might describe my life. I've learned to look less at the negative and embrace the positive. My son remembers the names of almost anyone he comes in contact with. He can play the piano by ear. He can line up his toys like nobody's business. He can repeat whole TV episodes (including commercials) word for word. He could count to 100 before he was two years old.

We didn't choose to get on the Autism Coaster but we do choose to keep our eyes open, raise our arms up high, and enjoy the ride. 

Resource: Autism Speaks has a 100 Day Kit available to families with a new diagnosis.

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Tags:  autism diagnosis aspergers spectrum family ABA PECS special needs
 
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